CAPED-C (Child & Adolescent Physical & Emotional Development – Cancer Context) is a project funded by the Eunice Kennedy Shriver National Institute of Child Health and Development. This research study is located at two sites - one at Virginia Commonwealth University and one at the University of Rochester.
In CAPED-C, we are concerned with how children and families cope and navigate the demands of a pediatric cancer or tumor diagnosis. We invite families to participate at diagnosis and follow up with them for six months, typically through their first blast of treatment. Obviously this is a time of great challenge for families, and we are grateful to the children and parents who share their journey with us. From them, we are learning a great deal about this pivotal time in their lives.